Letters to School Nurse Harwood, Teacher Michelle Maldari, and Principal Landeryou

Dear Friends of Ariana-Leilani

Dr. Ariel King, Ariana-Leilanii's mother, called the School nurse and told her about Ariana-Leilani's Severe Chronic Neutropenia. She then sent the school pricincipal Landeryou, her teacher, Maldari (2 and 3rd grade), and the school nurse, Harwood and the NON-TREATING PHYSICIAN AND FRIENDS OF PFEIFFER, Dr. Scott Nagel Myers the same information basically saying that Ariana-Leilani is being subjected to Mal-practice and Tuskeegee experimentation by having life-saving medicine withheld from her. Please forward the following information, publish it, do with it anything that can help Ariana-Leilani keep her G-d given life.

Personal message from Ariel King: Thank you all for your love and support, with all my love and commitment to our collective cause to health through justice for women and their children. Ariel

----- Forwarded Message -----
From: Dr Ariel King To: "Maldari Michelle ( ES) <>; "David Landeryou (DCPS-OST)"" <>
Cc: Scott N Myers <>;
Sent: Wednesday, June 6, 2012 6:56 PM
Subject: Information - Untreated Severe Chronic Neutropenia for Ariana-Leilani King-Pfeiffer

Dear Nurse Harwood, Ms. Maldari and Mr. Landeryou, 

I write to you collectively to update you on Ariana-Leilani's

untreated (nupogen) very rare Severe Chronic Neutropenia

which is life threatening. She can die of infection without 

the normal signs of infection because she has a broken

immune system with very few neutrophils to rally a 

response with a fever or redness.

Prof. Dr. Karl Welte, the Number #1 world expert and founder of the 

only medicine (G-CSF, aka nupogen) to treat Severe Chronic Neutropenia 

has been intimately following Ariana-Leilani's case with all of her medical 

records since birth. Dr. Scott N. Myers, knows of Prof. Dr Welte's

expertise as the world expert on SCN and it treatment, and has written

an article using data from the Severe Chronic Neutropenia International

Registry, that Prof. Welte founded and reamins the Co-Director.

In his February 2012 letter (attached) he states that Ariana-Leilani must

immediately receive (G-CSF) "nupogen"the life-saving, 

immune-boosting medicine on a regular basis. The medicine is free 

to her because she is on the Severe Chronic Neutropenia 

International Registry. Yet, she is not getting this medicine.

Untreated neutropenia with available medicine IS malpractice

on the part of Dr. Scott N. Myer (Dr. Myers last school informative

note was written in 2009, although it is not dated. It stated that the precaustions 

for SCN for Ariana-Leilani is to stay away from sick people and crouds).

Both Dr. Myers and my husband and Ariana-Leielani's father, Michael Pfeiffer 

know clearly and have been warned numerous times that non-treatment 

of Ariana-Leilani's severe Chronic Neutropenia will lead to death.

Prof. Dr. Karl Welte's letter clearly states that if she does not get this 

immune boosting free medicine, then with time she will die from a 

common infection, likely to be contracted from school. Prof. Dr.

Dale in his letter 2011 (attached) states that "untreated SCN can

lead to toxic, shock, loss of limb, or loss of life."

Ariana-Leilani is severely immune compromised. There are precausions

that should be followed where she is at school. Her desk and 

pens and personal items need to be wiped down and kept seperate, as

the nurse from the SCNIR said to Key staff last year. Ariana-Leilani is

like your other students who are treated for childhood cancer 

or organ transplant, and thus have a broken immune system, 

a very week immune system.

Thus, it is even more important that you and all the Key

Elementary staff are aware of her dietary restrictions 

(no salads, yogurt, lunch meet, ect.) and also the signs

of infection, a low tempreture, rather than a fever, a

stomach ache, etc. A Severe Chronic Neutropenia

Handbook is attached for all the Key School Staff;

the Arts/Drama School;  After-school Starff, and

DCPD Summer School Staff.

Please feel free to contact either of the Co-Directors

of the Severe Chronic Neutropenia International Registry

(SCNIR), Prof. Dr. Dale or Prof. Dr. Karl Welte or the

clinical nurses that work with them for more information.

Now that I have updated you on the information about

Ariana-Leilani's Severe Chronic Neutropenia at this

time, please make the necessary allowances and actions

to limit her possible exposure to common bacteria from

which she could die in less than 18 hours.

I will continue to keep you informed and updated with

information about Ariana-Leilani's very rare Severe

Chronic Neutropenia. 

The Independent Educational Program (IEP) that was reviewed

and renewed for the 2012-2013 school year is listed under

"other health" issues of Attention Defficit Hyperactive Disorder (ADHD), 

yet it fails to mention or  take into account Ariana-Leilani's Severe Chronic Neutropenia. 

I am sure that this was just an oversight and will be promptly corrected.

Thank you for incorporating this health information (SCN letters and handbook)

into Ariana-Leilani's health records and formally making all the staff aware

of her life-threatening health issues and how she needs to avoid common infections.

Best regards,

Ariel King

Ariana-Leilani's Mommy and Protector

cc: Scott Nagel Myers, MD, MPH - Georgetown Lombardi Children's Cancer Center

Dr. Ariel  R. King, MPH, MBA, PhD, DTM&H

Friends of Ariana Leilani, don't forget to sign her petition and ask your friends to do so.

Open Letter to First Lady Michelle Obama

Sunday, May 13, 2012, Mother’s Day

Dear First Lady Michelle Obama,

I am writing on behalf of Ariana-Leilani, a German-American, African-American, 9 year old child in Washington D. C. who is not being treated for a life-threatening disease that she has already been diagnosed with and for which free medicine is available.  

The disease is called Severe Chronic Neutropenia, which affects the immune system and places its victims in danger of sudden death from simple infections, because the usual symptoms of infection, such as fever, are not present.  

Reasons for the neglect of Ariana-Leilani appear to be diverse, but there is little doubt that racism is playing a part in the life-threatening bureaucratic neglect of this child. Her mother is African-American, and, at this point, is only asking that her child be given the life-saving medicine she needs. Her father is a Caucasian physician with the V.A. hospital in D. C. who lives in Ward 3, a district in D. C. that has already received media attention in the Examiner for not affording the same protection to children of white parents as is given to children of black parents.

There is also evidence that cronyism among the physicians and hospitals involved is also playing a part in the neglect of this child.

Two years ago, the German Embassy made an official request that Ariana-Leilani receive treatment and independent testing to determine the cause of her disease—Neutropenia is always caused by something. The request was entirely reasonable, but her father, who is a German citizen, still refuses to have this done. There is no doubt the life of this child is in danger. Her situation is acute. Following is the reference to the request by the German Embassy: Ariana-Leilani Margarita Alexandra KING-PFEIFFER Ref. No, {please cite in response): RK 520, SE King-Pfeiffer

Complaints have also been filed with the District Court: Case 1:11-cv-01124-JSG Document 24 Filed 04/13/12 IN THE UNITED STATES DISTRICT COURT FOR THE DISTRICT OF COLUMBIA Civil Action No. 1:11-cv-001124-JSG to the Honorable Judge James S. Gwin.

I appeal to you as Ariana-Leilani’s First Lady and as a mother. I thank you for your concern and attention in this matter.

Sincerely

Jocelyn Andersen

.
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This letter has also been placed in the mail to First Lady Michelle Obama on Mothers Day 2012. Friends of Ariana-Leilani, if you have not already signed her petition, please do so, and then add your cards, letters, emails, or phone calls to mine! See below for contact info for First Lady.

Contact Information Web Site: whitehouse.gov/administration/michelle_obama/ E-mail: Contact the First Lady Phone: (202) 456-1414 Fax: (202) 456-2461 Address: 1600 Pennsylvania Ave., NW Washington, DC 20500

Happy belated birthday Ariana-Leilani

DEAR FAMILY AND FRIENDS,

TODAY, 7 MAY 2012 IS ARIANA-LEILANI'S 9TH BIRTHDAY! YET, SHE WILL NOT CELEBRATE IT WITH THOSE SHE LOVES AND WHO LOVE HER, BUT SICK, ALONE, AND ISOLATED IN A ONE-BEDROOM APARTMENT IN WASHINGTON, DC WITH NO CONTACT WITH FAMILY, FRIENDS, AND OTHER CHILDREN OUTSIDE OF SCHOOL.

ALL CHILDREN WORLDWIDE DESERVE THEIR BASIC HUMAN RIGHTS TO BE UPHELD AND DEFENDED.

THANK YOU ALL FOR YOUR CONTINUED SUPPORT FOR ARIANA-LEILANI'S LIFE, HER COURAGE, DETERMINATION, AND CONTINUED BELIEF IN HUMANITY AND SHE WILL BE SAVED!

FOR HER BIRTHDAY WOULD YOU PLEASE ASK ALL YOUR FAMILY, FRIENDS AND COLLEAGUES WORLDWIDE TO SIGN HER PETITION (ANONYMOUSLY OR NOT). NOW WE HAVE OVER 1100 PEOPLE FROM 118 COUNTRIES. THE GOAL IS 10,000 TOTAL WITHIN ONE MORE MONTH.

hppt://www.ariana-leilani.com
or
http://www.gopetition.com/petitions/save-ariana-leilani.html

TO GIVE HER, THE ULTIMATE BIRTHDAY GIFT SHE DESERVES - HER LIFE - WITH THE FREE MEDICINE (NUPOGEN), TOXICOLOGY AND EXPERT MEDICAL CARE,  SO THAT SHE CAN CELEBRATE MANY MORE BIRTHDAYS TO COME!

WITH LOVE,

ARIEL (ARIANA-LEILANI'S MOMMY) & DR. MARGO KING (ARIANA-LEILANI'S GRANDMA)

Sidewalk chalk campaign to save Ariana-Leilani

Ariana-Leilani graffiti. Just be sure and use chalk, not spray paint!  It washes away with the rain, so does not damage property, but the message can be seen by hundreds or more before the next rain!

This one on sidewalk at Cotton Court. There is another just like it at the Auburndale Sport Complex in Auburndale, FL USA. Be sure and write "google" under it, so folks will know to look her up. Sign her petition yourself and don't forget to send a note to President Obama.

A box of sidewalk chalk costs about $2.00. Buy some chalk. 

People all over the world care about Ariana-Leilani. Let's get this little girl the help she needs. Don't forget to sign her petition yourself and publicly follow this blog (if you can) to show your support.

Moms Without Kids: A Family Court Holocaust: African American child denied protection because s...

Moms Without Kids: A Family Court Holocaust: African American child denied protection because s...: Below is a copy of a letter mailed to the President today: Dear President Obama, I am writing to ask you to intervene on behalf...

Subscribe Button Now Added

Sorry, forgot to add the subscribe button yesterday. It is on the sidebar now. Show your support for Ariana-Leilani. Don't forget to sign her petition!

Become Ariana-Leilani's Friend

Ariana-Lielani is a black, German-American child who is critically ill and is receiving no medication for a disease that has been diagnosed.

Money is not the problem. Racism, sexism, and stinking bureaucracy are the culprits.

This blog is for friends of Ariana-Leilani to come together in support of getting this child help. This will be an action oriented site--not simply awareness raising (although that is vitally important too).

What can you do?

• Sign her Petition
• Forward the petition to your friends
• Tweet this post
• Ask followers to RT and FORWARD
• Show public support by subscribing to this blog
• Link to this blog
• Pray - Organize a prayer group for Ariana-Leilani
• Print and distribute  her flyers (printable flyer in sidebar link)
• Write Letters
• Send a flyer to the President
• Send a flyer to the First Lady
• Send a flyer to the German Embassy
• Send a flyer to your State Reps and Senators
• Send a flyer to anyone who is in a position of influence to help
• Add a personal note with each flyer
• Call your representatives (easy address look up in sidebar links)
• Suggest what needs to included in this blog to help you become an advocate for this child and to help the rest of us become better advocates

Reference the link list in the sidebar for details about Ariana-Leilani.

We will do everything we can to make it easy to advocate for this child. Link list will updated as needed.

Please become Ariana-Leilani's friend! Sign her petition. Subscribe to this blog and actively comment with ideas to help and also share what you are doing to help.

Together, let's rescue this child.


The petition site is: http://www.ariana-leilani.com  

President Barack Obama
The White House
1600 Pennsylvania Avenue NW
Washington, DC 20500

Address and contact look up for your State Representative. Go to the following site and type in your zip code: http://www.house.gov/