Letters to School Nurse Harwood, Teacher Michelle Maldari, and Principal Landeryou

Dear Friends of Ariana-Leilani

Dr. Ariel King, Ariana-Leilanii's mother, called the School nurse and told her about Ariana-Leilani's Severe Chronic Neutropenia. She then sent the school pricincipal Landeryou, her teacher, Maldari (2 and 3rd grade), and the school nurse, Harwood and the NON-TREATING PHYSICIAN AND FRIENDS OF PFEIFFER, Dr. Scott Nagel Myers the same information basically saying that Ariana-Leilani is being subjected to Mal-practice and Tuskeegee experimentation by having life-saving medicine withheld from her. Please forward the following information, publish it, do with it anything that can help Ariana-Leilani keep her G-d given life.

Personal message from Ariel King: Thank you all for your love and support, with all my love and commitment to our collective cause to health through justice for women and their children. Ariel

----- Forwarded Message -----
From: Dr Ariel King To: "Maldari Michelle ( ES) <>; "David Landeryou (DCPS-OST)"" <>
Cc: Scott N Myers <>;
Sent: Wednesday, June 6, 2012 6:56 PM
Subject: Information - Untreated Severe Chronic Neutropenia for Ariana-Leilani King-Pfeiffer

Dear Nurse Harwood, Ms. Maldari and Mr. Landeryou, 

I write to you collectively to update you on Ariana-Leilani's

untreated (nupogen) very rare Severe Chronic Neutropenia

which is life threatening. She can die of infection without 

the normal signs of infection because she has a broken

immune system with very few neutrophils to rally a 

response with a fever or redness.

Prof. Dr. Karl Welte, the Number #1 world expert and founder of the 

only medicine (G-CSF, aka nupogen) to treat Severe Chronic Neutropenia 

has been intimately following Ariana-Leilani's case with all of her medical 

records since birth. Dr. Scott N. Myers, knows of Prof. Dr Welte's

expertise as the world expert on SCN and it treatment, and has written

an article using data from the Severe Chronic Neutropenia International

Registry, that Prof. Welte founded and reamins the Co-Director.

In his February 2012 letter (attached) he states that Ariana-Leilani must

immediately receive (G-CSF) "nupogen"the life-saving, 

immune-boosting medicine on a regular basis. The medicine is free 

to her because she is on the Severe Chronic Neutropenia 

International Registry. Yet, she is not getting this medicine.

Untreated neutropenia with available medicine IS malpractice

on the part of Dr. Scott N. Myer (Dr. Myers last school informative

note was written in 2009, although it is not dated. It stated that the precaustions 

for SCN for Ariana-Leilani is to stay away from sick people and crouds).

Both Dr. Myers and my husband and Ariana-Leielani's father, Michael Pfeiffer 

know clearly and have been warned numerous times that non-treatment 

of Ariana-Leilani's severe Chronic Neutropenia will lead to death.

Prof. Dr. Karl Welte's letter clearly states that if she does not get this 

immune boosting free medicine, then with time she will die from a 

common infection, likely to be contracted from school. Prof. Dr.

Dale in his letter 2011 (attached) states that "untreated SCN can

lead to toxic, shock, loss of limb, or loss of life."

Ariana-Leilani is severely immune compromised. There are precausions

that should be followed where she is at school. Her desk and 

pens and personal items need to be wiped down and kept seperate, as

the nurse from the SCNIR said to Key staff last year. Ariana-Leilani is

like your other students who are treated for childhood cancer 

or organ transplant, and thus have a broken immune system, 

a very week immune system.

Thus, it is even more important that you and all the Key

Elementary staff are aware of her dietary restrictions 

(no salads, yogurt, lunch meet, ect.) and also the signs

of infection, a low tempreture, rather than a fever, a

stomach ache, etc. A Severe Chronic Neutropenia

Handbook is attached for all the Key School Staff;

the Arts/Drama School;  After-school Starff, and

DCPD Summer School Staff.

Please feel free to contact either of the Co-Directors

of the Severe Chronic Neutropenia International Registry

(SCNIR), Prof. Dr. Dale or Prof. Dr. Karl Welte or the

clinical nurses that work with them for more information.

Now that I have updated you on the information about

Ariana-Leilani's Severe Chronic Neutropenia at this

time, please make the necessary allowances and actions

to limit her possible exposure to common bacteria from

which she could die in less than 18 hours.

I will continue to keep you informed and updated with

information about Ariana-Leilani's very rare Severe

Chronic Neutropenia. 

The Independent Educational Program (IEP) that was reviewed

and renewed for the 2012-2013 school year is listed under

"other health" issues of Attention Defficit Hyperactive Disorder (ADHD), 

yet it fails to mention or  take into account Ariana-Leilani's Severe Chronic Neutropenia. 

I am sure that this was just an oversight and will be promptly corrected.

Thank you for incorporating this health information (SCN letters and handbook)

into Ariana-Leilani's health records and formally making all the staff aware

of her life-threatening health issues and how she needs to avoid common infections.

Best regards,

Ariel King

Ariana-Leilani's Mommy and Protector

cc: Scott Nagel Myers, MD, MPH - Georgetown Lombardi Children's Cancer Center

Dr. Ariel  R. King, MPH, MBA, PhD, DTM&H

Friends of Ariana Leilani, don't forget to sign her petition and ask your friends to do so.