Thursday, June 14, 2012

Letters to School Nurse Harwood, Teacher Michelle Maldari, and Principal Landeryou

Dear Friends of Ariana-Leilani
Dr. Ariel King, Ariana-Leilanii's mother, called the School nurse and told her about Ariana-Leilani's Severe Chronic Neutropenia. She then sent the school pricincipal Landeryou, her teacher, Maldari (2 and 3rd grade), and the school nurse, Harwood and the NON-TREATING PHYSICIAN AND FRIENDS OF PFEIFFER, Dr. Scott Nagel Myers the same information basically saying that Ariana-Leilani is being subjected to Mal-practice and Tuskeegee experimentation by having life-saving medicine withheld from her. Please forward the following information, publish it, do with it anything that can help Ariana-Leilani keep her G-d given life.

Personal message from Ariel King: Thank you all for your love and support, with all my love and commitment to our collective cause to health through justice for women and their children. Ariel

----- Forwarded Message -----
From: Dr Ariel King To: "Maldari Michelle ( ES) <>; "David Landeryou (DCPS-OST)"" <>
Cc: Scott N Myers <>;
Sent: Wednesday, June 6, 2012 6:56 PM
Subject: Information - Untreated Severe Chronic Neutropenia for Ariana-Leilani King-Pfeiffer

Dear Nurse Harwood, Ms. Maldari and Mr. Landeryou, 

I write to you collectively to update you on Ariana-Leilani's
untreated (nupogen) very rare Severe Chronic Neutropenia
which is life threatening. She can die of infection without 
the normal signs of infection because she has a broken
immune system with very few neutrophils to rally a 
response with a fever or redness.

Prof. Dr. Karl Welte, the Number #1 world expert and founder of the 
only medicine (G-CSF, aka nupogen) to treat Severe Chronic Neutropenia 
has been intimately following Ariana-Leilani's case with all of her medical 
records since birth. Dr. Scott N. Myers, knows of Prof. Dr Welte's
expertise as the world expert on SCN and it treatment, and has written
an article using data from the Severe Chronic Neutropenia International
Registry, that Prof. Welte founded and reamins the Co-Director.

In his February 2012 letter (attached) he states that Ariana-Leilani must
immediately receive (G-CSF) "nupogen"the life-saving, 
immune-boosting medicine on a regular basis. The medicine is free 
to her because she is on the Severe Chronic Neutropenia 
International Registry. Yet, she is not getting this medicine.
Untreated neutropenia with available medicine IS malpractice
on the part of Dr. Scott N. Myer (Dr. Myers last school informative
note was written in 2009, although it is not dated. It stated that the precaustions 
for SCN for Ariana-Leilani is to stay away from sick people and crouds).
Both Dr. Myers and my husband and Ariana-Leielani's father, Michael Pfeiffer 
know clearly and have been warned numerous times that non-treatment 
of Ariana-Leilani's severe Chronic Neutropenia will lead to death.

Prof. Dr. Karl Welte's letter clearly states that if she does not get this 
immune boosting free medicine, then with time she will die from a 
common infection, likely to be contracted from school. Prof. Dr.
Dale in his letter 2011 (attached) states that "untreated SCN can
lead to toxic, shock, loss of limb, or loss of life."

Ariana-Leilani is severely immune compromised. There are precausions
that should be followed where she is at school. Her desk and 
pens and personal items need to be wiped down and kept seperate, as
the nurse from the SCNIR said to Key staff last year. Ariana-Leilani is
like your other students who are treated for childhood cancer 
or organ transplant, and thus have a broken immune system, 
a very week immune system.

Thus, it is even more important that you and all the Key
Elementary staff are aware of her dietary restrictions 
(no salads, yogurt, lunch meet, ect.) and also the signs
of infection, a low tempreture, rather than a fever, a
stomach ache, etc. A Severe Chronic Neutropenia
Handbook is attached for all the Key School Staff;
the Arts/Drama School;  After-school Starff, and
DCPD Summer School Staff.

Please feel free to contact either of the Co-Directors
of the Severe Chronic Neutropenia International Registry
(SCNIR), Prof. Dr. Dale or Prof. Dr. Karl Welte or the
clinical nurses that work with them for more information.

Now that I have updated you on the information about
Ariana-Leilani's Severe Chronic Neutropenia at this
time, please make the necessary allowances and actions
to limit her possible exposure to common bacteria from
which she could die in less than 18 hours.
I will continue to keep you informed and updated with
information about Ariana-Leilani's very rare Severe
Chronic Neutropenia. 

The Independent Educational Program (IEP) that was reviewed
and renewed for the 2012-2013 school year is listed under
"other health" issues of Attention Defficit Hyperactive Disorder (ADHD), 
yet it fails to mention or  take into account Ariana-Leilani's Severe Chronic Neutropenia. 
I am sure that this was just an oversight and will be promptly corrected.

Thank you for incorporating this health information (SCN letters and handbook)
into Ariana-Leilani's health records and formally making all the staff aware
of her life-threatening health issues and how she needs to avoid common infections.

Best regards,

Ariel King
Ariana-Leilani's Mommy and Protector

cc: Scott Nagel Myers, MD, MPH - Georgetown Lombardi Children's Cancer Center

Dr. Ariel  R. King, MPH, MBA, PhD, DTM&H

Friends of Ariana Leilani, don't forget to sign her petition and ask your friends to do so.

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